Category Archives: Leukemia Information

As a person diagnosed with CLL (chronic lymphocytic leukemia) since 2001, I’ve had my eyes trained on Google Alerts and on the web in general, regularly looking for breakthroughs, both conventionally and in the alternative medicine arena. Many people who are diagnosed with CLL are told to hold off on any treatment, as the disease often progresses slowly, and any improvement with treatment is not permanent. Worse yet, the course and aggressiveness of the disease can change at any time. Patients are told to “watch and wait.” This is not a happy way to live.

No role models. The sad truth is that, until this past January 2009, I could find no reference (not one) of any person who was cured of CLL through any kind of traditional medical — or alternative — therapy. The only exception are those who have been cured by way of a bone marrow transplant (BMT). Unfortunately, many people do not survive the procedure. It is extremely risky. Worse yet, a patient can survive the BMT and still have CLL, or develop CLL again at a later date.

The five-year time-line. Despite all the research and trials, there is still no conventionally-sanctioned therapy (chemotherapy, radiation, immunotherapy, etc.), short of BMT, that can effect a cure. Doctors give patients the hope for a complete remission of five years with some of the available therapies. Not all patients achieve complete remission in the first round of chemotherapy. And the chance of success, measured by five-year survival, decreases with each new form of conventional therapy. Not an encouraging picture. This situation has been evident to me since 2001, when I was forty-six and first diagnosed. Who wants to hear about a five-year life plan when you’re forty-six? Not me! While there have been some promising conventional “breakthroughs,” the survival rate remains pretty much the same today.

The search for an alternative. My search for an alternative treatment, or treatment protocol, has been equally difficult. I have been able to find testimony on the web of leukemia patients who have become cancer-free (acute myelogenous leukemia or acute lymphocytic leukemia), but no such luck for CLL. At best, there were stories of people who had held off their CLL with the controversial laetrile (apricot seed extract). But no one with CLL had become cancer free. I was discouraged, but I never gave up the search, or my attempt to discover a blueprint to good health.

The 2009 breakthrough. In January of this year, my Google Alerts revealed an article written by Steve Freier, a man with CLL who recovered to full cancer-free health. He regained his health by having his root canals removed and also by taking coral calcium. Because of his experience, I am in the process now of having all my mercury amalgams replaced with safer porcelain fillings. To find information about his recovery, type “Steve Freier” and “CLL” into Google.

Breakthrough #2. In April 2009, while searching for information about infrared saunas and its effect on leukemia, my husband came across this website: http://www.CLLDefeated.com. It is the story of Hessel Baartse, of Adelaide, Australia. He has totally defeated his CLL by means of removing his root canals and mercury amalgams, and by drastically altering his diet and supplementation, with a concentration on restoring his pH levels to a healthy balance. He credits his dentist, www.ericdavisdental.com for his complete recovery.

There are finally role models for CLL recovery. What used to be a complete mystery now is a challenge with a blueprint for success. There are now at least two cases of men who have beat the odds and defeated their CLL by means of mercury amalgam and root canal removal, nutritional therapy, and pH balance. The further good news is that this program is likely a blueprint to health for people with many other chronic health issues, including cancers.

The future. Because of the Internet and the speed with which we can share information, more people will be able to find a way to recover their good health through alternative means.

I won’t be able to change the nomenclature of the medical profession but I refer to myself as a client, not a patient. By definition, a patient is “One who receives medical attention or treatment.” The archaic meaning was “One who suffers,” from the Latin verb meaning “to endure.” A client on the other hand is “The party for which professional services are rendered.”

Catch the nuance? A patient is the object of medical care; a client is the subject of medical services. In language as in life, an object is passive, a subject is active.

A patient complies with the experts. A client consults the experts, then follows what seems the best advice.

A patient might complain but would never contradict an authority. A client will ask questions and weigh alternatives before deciding.

A patient goes where sent and does not change doctors or clinics. A client tries to find the best physicians and facilities realistically available.

A patient asks “What?” A client asks “Why?”

Being a client takes a lot more work. I have to educate myself about my condition and treatment options. It’s a daunting but doable task thanks to the Internet. There are plenty of reputable sites with reliable information the average person can understand.

Oncologists know a shipload more about lymphoma than do its sufferers, but they don’t know everything. It’s impossible to keep up with the ocean of new information. A dialogue with a well-informed client could suggest new possibilities to a thoughtful physician.

When I see Dr. Kurbegov, my oncologist, I’ll ask if radioimmunotherapy is an option for my type of lymphoma based on an article I read in the New York Times. I’ll ask about any clinical trials for which I might be a candidate, especially those sponsored by the MD Anderson Cancer Center where Dr. Kurbegov was a Chief Fellow.

I’m not trying to play doctor or impress anyone with my research skills. I’m just trying to understand my cancer and to be proactive in eradicating it. After all, it’s my life.

Cancer. The C-word that changed my life forever! The specific diagnosis was non-Hodgkins lymphoma and the protocol consisted of two and a half years of combination chemotherapy with a month of radiation. After hearing the doctor utter those words, all I could hear thereafter was la la la la la as my jaw dropped. It was a deer in the headlights moment. Cancer?! No way; I’m twenty-five years old. They’re wrong! But they weren’t and I had to deal with it. Once I regained control of my articulators I demanded explanations. Why me? How could this happen? What do I do? Am I going to be alright? What, exactly, is non-Hodgkins lymphoma? The questions went on and on. Some of the answers were provided thoroughly, many were vague.

Introduced to cancer, non-Hodgkins lymphoma

When I was first introduced to cancer, non-Hodgkins lymphoma, I had so many worries, concerns, fear, and visions of worst case scenario. However, as time went on and I began to understand what I needed to do to regain my good health, it wasn’t as bad as I originally imagined. There were many ups and downs and the protocol was extremely difficult. Nevertheless, I have to be honest and say that when I reflect upon my time living with cancer, there were so many great things that happened as a result of the diagnosis, experiences I never would have had, people I never would have met, all of which changed the direction my life was going in, all for the better. As a cancer survivor, I learned the importance of gratitude – never taking anything for granted. As a non-Hodgkins lymphoma survivor, I have learned much about the medical field and the different types of cancer. I’ve learned to accept who I am as opposed to others projected image of who I am. I’ve learned there IS a silver lining while living with cancer and life thereafter as a cancer survivor. And I’ve learned never to give up, whether it’s a cancer diagnoses, or any other challenge life throws my way. I’ve become STRONGER for having lived with cancer.

Living with cancer, non-Hodgkins lymphoma

These are just a few of the intangibles I’ve learned and lived, as opposed to slapping myself in the forehead yet again and thought, live and learn. Cancer made me stronger mentally, physically, and spiritually. In the beginning I never would have imagined I’d be saying this…I am thankful for having been diagnosed with non-Hodgkins lymphoma and the two and a half years I spent living with cancer.

Leukemia is one type of cancer that affects the blood. This disease is characterized by a significant increase of the leukocytes, popularly called white blood cells.

The first symptom is a large number of these cells in the blood marrow or even in the circulation. Leukemia is a result of a genetic malfunction, a mutation that happens inside the bone’s marrow. This disease has several types. It is classified taking into consideration the type of the white blood cells that are involved and also the way in which the disease is progressing.

Leukemia can derive from the bone marrow and it is called myelogenous or granulocytic leukemia and also lymphocytic leukemia when it involves the lymph nodes.

Leukemia disease can either be chronic or acute. It all depends on the kind of white cells that are affected. The chronic one is named chronic myeloid leukemia (CML) or chronic lymphocytic leukemia (CLL). The CLL in pets like dogs and cats has a lot of similarities with the human disease but still some major differences too.

The ALL, or acute lymphoid leukemia is a disease that progresses quite rapidly. A few of the symptoms include fever, anemia, random bleeding, loosing the appetite, swollen lymph nodes, panting, anxiousness, vomiting, pale gums, shifting limb lameness, lack of coordination, some infections that appear because of the week immune system. All these symptoms can cause death if the disease is not treated.

At a clinical examination, if the dog has fever or a bigger than usual spleen or liver, it is a good sign of the disease. Many mature animals develop the acute lymphoid leukemia rather then the young. This is a difference from the human disease which is quite common in children. Another important fact is that this disease can cause some ocular lesions in dogs.

The chronic leukemia has many cancer white cells that are affecting the body’s ability to fight the infections. The disease progresses slowly and it is fatal. It suppresses the immune system and then the bone marrow fails to function. The bag cells then infiltrate the other organs. The disease easily spreads into the blood, the lymph nodes, liver or spleen and into the central nervous system. The disease doesn’t create solid tumors or other solid masses. The death can be quite painful.

Discovering the leukemia can be done ding a simple blood examination and then, if there are suspicions, a bone marrow analysis.